For more information, check out these other Internet sites:
Norma Kennedy Plourde's CF site ... this is a very comprehensive web page written by an adult with cystic fibrosis.
Pub Med ... a searchable database of medical research papers, a very good source of information.
Cystic Fibrosis Foundation..."The mission of the Cystic Fibrosis Foundation is to assure the development of the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease."
ShaRe CF Miracles ... SharkTank Research was formed in 1998 to find a cure to cystic fibrosis through extensive research, critical analysis, and the exchange of ideas. The members of the group either have cystic fibrosis or have children with it.
The Merck Manual of Diagnosis and Therapy ... "the world's most widely used general medical text"
Cystic Fibrosis Information for Educators and Leaders ... Some basic information for adults who are in the position to care for a child with Cystic Fibrosis
CF prescriber has been set up as a non profit web site with the aim of providing free information to professionals involved with the
treatment of cystic fibrosis. An open access (PUBLIC) section is also available to both patients and family.
The site has been created and is maintained by a multidisciplinary clinical team who are actively involved in the treatment and
day-to-day care of people with cystic fibrosis.
Information provided by Daniel Peckham.
Cochrane Cystic Fibrosis &
Genetic Disorders Review Group comprises an international network of health care professionals, researchers and consumers preparing,
maintaining, and disseminating systematic reviews of randomised control trials in the treatment of cystic fibrosis and other genetic disorders.
Information provided by Nikki Jahnke.
Cystic-L mailing list home page, began in 1994 and is
going strong! With an international subscribership, Cystic-L welcomes
everyone to share information and support related to cystic fibrosis.
If you wish to contact the author of this site, please email
